
Eeeek. So many of you have wondered if I croaked long ago. One of my friends has been searching through Maine obituaries.
Some of you may have hoped that I did -- you know, because I am such a blazing beauty and such an incredible talent that living alongside of me in the world is too much of a formidable challenge.
There's that typical lame attempt at humor again.
Anyhow, since so many of you still stop by, I have felt increasingly like a dirty, smelly foot embedded with fecal-covered pebbles PLUS I really, really miss you.
I can't tell you that enough. Both parts. But the latter --- that is the last reason I am writing this now. I love you guys. I miss the energy we shared for a long time, and the understanding and humor we brought to each other. But, I didn't think I was worthy of coming back here. There's the shame and guilt stuff again! It didn't slough off like old skin. Since I have been gone, there has been some learning, but I am still having trouble overcoming certain destructive mindsets. I turned 38 in June, but I'm not beating myself over that. I have no control over the lottery numbers, the number at the deli counter, or that I was born in 1971. And, I firmly believe that a particular age does not signify that we are fully "grown up." At no certain birthday will the Maturity Fairy dance on your head at 3:00 in the morning, sprinkling tinsel and glitter in your hair, leaving a Good Job! greeting card on your nightstand before she flies away to decorate the next all-knowing being.
So, I have been staying away partially because of all of that mind-traffic. I also have been in the hospital a few times, have moved, and am getting ready to move again. I was also diagnosed with legal blindness back in the late Fall of 2008, and it has progressed/regressed?/worsened? significantly since, requiring a second pair of glasses and lenses within 4 months. I knew almost nothing about legal blindness at that time and was told by a friend that the diagnosis was going to be OK because one of her loved ones has the diagnosis and that person's life hasn't changed since. Whew. That put my mind at ease in a way, though hearing from a doctor the term "legally blind" was a shock to my system. Since that day, I have had far more testing and visited a specialist out of state. I have learned that it was a perfectly OK for me to feel alarmed and that each case of legal blindness is different in its cause, its intensity, and the direction it eventually takes. No one on either side of my family has ever had vision problems. My condition has been linked directly to over-oxygenation from the years of living and sleeping in oxygen tents, a problem rooted back in the 60's and 70's which has since been acknowledged and remedied over the years by the medical community. Steps have been taken to cut down oxygen usage in pediatric respiratory therapy so there is no vision loss in sick children.
Legal blindness basically means that a legally blind individual would have to stand 20 feet (6.1 m) from an object to see it—with vision correction—with the same degree of clarity as a normally sighted person could from 200 feet (61 m). Approximately ten percent of those deemed legally blind, by any measure, have/will eventually have no vision. The rest have some vision, from light perception alone to relatively good acuity. Approximately 1.3 million Americans are legally blind. My vision has been poor since I was a little girl and worsens yearly, requiring a new prescription. For example, without lenses, I can stand bout 1.5 feet from someone and look directly into that person's face and still not be able to make out any specific facial features (which might, in some cases, come in handy). I can see lip color and hair - that's about it. The rest of their head is one big blur. I have worn glasses since I was about 5. I remember the day my mom drove me to pick up my first pair; it was a beautiful New England fall day. After trying them on inside the office, I wore them outside and got into the car. As we drove down the street, I was in a complete state of wonder. It was the first time I realized that trees were not just big blobs of color; they actually had leaves that were not only separate, but even visible from the street. Give very young children a piece of paper and crayons and most kids will color their first tree with a thick brown trunk and a big green glob on top. That was certainly my childhood interpretation of a tree for 5 years, until the very day a pair of glasses were slipped onto my face. What a revelation.
As far as how the news is affecting me now? There's still fear there, but I'm not thinking about it much at all. There is far too much at the current time to deal with what might happen soon or later. The old googlers are getting more and more blurry and I have more appointments that I used to, which sucks. The specialist was stoic and doctor-like. When he sent his report back to my regular eye doctor with the pictures/films etc, I guess he left the poor woman doctor to say the following. I asked her if they had any idea of how my vision loss was going to be rolling out long term. So kindly, she said "If I were you, and were there things in the world that I desperately wanted to see, I'd aim to get there within ten years."
Otherwise, I can only be on the computer for about 2 hours at a time and I have to take a rest for my eyes.
I have been writing about 8-10 hours a day in the past 2 months (essays, novel excerpts, poetry and short stories) and have been sending stuff out to more elite literary magazines and larger prize contests. I need to bring in some income asap. I have sent my work out over the last two years to small online contests, or else to win smaller prizes and have done well, and have even been encouraged to go big by those smaller contests, but have been afraid to GO BIG. Now, there can be no excuses. No self doubt. None of it. I have to write through it. Sometimes I literally am typing away and simultaneously holding a verbal altercation with my brain..."You suck," and then, "Keep writing, don't listen to it, " and then a quick retort, "Listen? No one will WANT to listen to this lousy shit.." and it goes on. Because damnit, I just can't let this crap win. It's so freaking dire and I can't keep living this scared. Doesn't living this scared for so long kill you? Can't it? And as little as my life can mean in the grand scheme at this point, I do matter to a few people. But, I can't live with my heart beating in my mouth every second, and my stomach churning. The heating company says no heat this winter. We kept our heat on 50 degrees or below or OFF all winter in 20 degree Maine weather and got propane bills at $500.00 a month. And no one will fix the bill so it makes some sense or listen. The place was an ice box. My parents wouldn't even stop by because it was so cold; so we're stuck with a 1600.00 bill. I have had doctor's notes all winter, but they only take them for 5 months. The heating company calls 5 times each day on the home number and on the cell, and all we can pay is 100.00 a month. They take the payment, but since it's not good enough -- even though we never got heat this winter -- and their "technicians" never figured it out -- but ultimately it's our bill. So, we're cut off, and we have to get some money together to move, so we'll try to stay here until it's December 1. I just hope it's not too cold by then. I got a letter today that the heat company is filing a law suit this coming week. I paid them 200.00 on the phone, which took car gas money for the month (100.000 and food money for the month (100.00). Our electric is going to be shut off on August 17th, which means there goes my nebulizer. Our medical costs are 800 plus a month which rips away big part of our income. LoveBug's income derives from Bank of America, a company which threatens closing their huge call center here every day, but in the meantime took away the monthly $1100.00 bonus that has been part of our income for 3 years now. That's been a big part of our income -- it always paid our house/rent payment and our medical insurance premium. Since it's a bonus, it's not like there are any hours freed up to get another job -- same full time hours, just no sales commission. Sneaky, sneaky. No warning at all - just the week before Christmas the sales manager handed employees a little note about losing their monthly sales bonus until the economy picks up, and a tiny candy cane.
Losing that money, well...we had no idea that was coming. Just like so many people in this country had no idea job loss was coming. So what is everyone doing out here? Any advice for how to survive? We are a slight amount over food stamps in our income - seriously we are over by about $12.00 a week, but if we got them, we'd receive about 270.00 a month in food stamps. So weird. There is no way for either of us to have 12.00 taken from our weekly income,
I have been writing about 8-10 hours a day in the past 2 months (essays, novel excerpts, poetry and short stories) and have been sending stuff out to more elite literary magazines and larger prize contests. I need to bring in some income asap. I have sent my work out over the last two years to small online contests, or else to win smaller prizes and have done well, and have even been encouraged to go big by those smaller contests, but have been afraid to GO BIG. Now, there can be no excuses. No self doubt. None of it. I have to write through it. Sometimes I literally am typing away and simultaneously holding a verbal altercation with my brain..."You suck," and then, "Keep writing, don't listen to it, " and then a quick retort, "Listen? No one will WANT to listen to this lousy shit.." and it goes on. Because damnit, I just can't let this crap win. It's so freaking dire and I can't keep living this scared. Doesn't living this scared for so long kill you? Can't it? And as little as my life can mean in the grand scheme at this point, I do matter to a few people. But, I can't live with my heart beating in my mouth every second, and my stomach churning. The heating company says no heat this winter. We kept our heat on 50 degrees or below or OFF all winter in 20 degree Maine weather and got propane bills at $500.00 a month. And no one will fix the bill so it makes some sense or listen. The place was an ice box. My parents wouldn't even stop by because it was so cold; so we're stuck with a 1600.00 bill. I have had doctor's notes all winter, but they only take them for 5 months. The heating company calls 5 times each day on the home number and on the cell, and all we can pay is 100.00 a month. They take the payment, but since it's not good enough -- even though we never got heat this winter -- and their "technicians" never figured it out -- but ultimately it's our bill. So, we're cut off, and we have to get some money together to move, so we'll try to stay here until it's December 1. I just hope it's not too cold by then. I got a letter today that the heat company is filing a law suit this coming week. I paid them 200.00 on the phone, which took car gas money for the month (100.000 and food money for the month (100.00). Our electric is going to be shut off on August 17th, which means there goes my nebulizer. Our medical costs are 800 plus a month which rips away big part of our income. LoveBug's income derives from Bank of America, a company which threatens closing their huge call center here every day, but in the meantime took away the monthly $1100.00 bonus that has been part of our income for 3 years now. That's been a big part of our income -- it always paid our house/rent payment and our medical insurance premium. Since it's a bonus, it's not like there are any hours freed up to get another job -- same full time hours, just no sales commission. Sneaky, sneaky. No warning at all - just the week before Christmas the sales manager handed employees a little note about losing their monthly sales bonus until the economy picks up, and a tiny candy cane.
Losing that money, well...we had no idea that was coming. Just like so many people in this country had no idea job loss was coming. So what is everyone doing out here? Any advice for how to survive? We are a slight amount over food stamps in our income - seriously we are over by about $12.00 a week, but if we got them, we'd receive about 270.00 a month in food stamps. So weird. There is no way for either of us to have 12.00 taken from our weekly income,
I just had 3 surgical epidurals in my back on Friday so I'm a hurting pup, but this has been fun, and who ever has been here -- hello! Missed you! I'll come back sometimes if you'll still have me. But, for those of you who still come by, or anyone who is new, I want to hear what you all have had going on first. Did anyone take a vacation over the winter? Is everyone OK? Those of you with chronic pain, how are you hanging in there?? Life, with all of its hills and valleys, begs to be shared I think. Especially now. I think we need to join hands and support one another.
H.
(Kitty image from http://www.icanhascheezburger.com/)





